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| Rogers (Spectrum News image) |
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| Behavioral Health Commissioner Katie Marks showed this slide. |
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| This effort is aimed at the stigma of drugs. (Photos by Al Cross) |
Events, trends, issues, ideas and independent journalism about health care and health in Kentucky, from the Institute for Rural Journalism at the University of Kentucky
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| Rogers (Spectrum News image) |
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| Behavioral Health Commissioner Katie Marks showed this slide. |
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| This effort is aimed at the stigma of drugs. (Photos by Al Cross) |
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| Barbara Kingsolver (Facebook photo) |
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| Winner of the 2023 Pulitzer for fiction |
"We have been trained, culturally trained, to think of addiction in this way, as a personal failing that needs to be punished. Incarceration does not cure addiction any more than it cures cancer. Addiction is a disease," she said. "It’s impossible to describe how terrible this disease is, not just the dope sickness of it but the fact that your entire life has to become just a really difficult, hard work in process of, every morning, getting your means, getting your fix, getting through another day. And nobody wants to live like that."
Kingsolver told Klein that she hopes her novel will help people have more compassion and think of people with addiction as having a disease and to get rid of the idea that you don't treat a person with addiction until they "hit bottom."
"That’s how we treat the disease of addiction. And it’s incredibly inhumane. And effective treatment will only happen after we switch over from putting this in the hands of the police and the prisons to medical workers who can meet addicted people where they live and offer them the first steps of clean needles and fentanyl test strips so that they won’t die in the weeks that it will take for them logistically, physically, emotionally, to get to the beginnings of treatment," she said.
And to those who maintain a moral objection to such "harm reduction" programs, she said, "It’s as if people feel that addicted people deserve to die. Imagine if we looked at any other disease that way."
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| State Department for Public Health map, adapted by Kentucky Health News; click on it to enlarge. |
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| Kentucky Health News graph from state data; click on it to enlarge. |
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| Boyle County Judge-Executive Trille Bottom accepts the Recovery Ready Community certificate from Gov. Andy Beshear. (Screenshot) |
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| Boyle County (Wikipedia map) |
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| An example of a harm reduction vending machine in Cincinnati (Photo from Kiosk Marketplace) |
To fight feelings of stigma that discourage intravenous drug users from getting clean needles at syringe-service programs, the University of Kentucky is starting a study that will put a vending machine with syringes and other harm-reduction supplies in an Appalachian Kentucky county.
"Interest in reduction kiosks is soaring nationwide and the proposed project would provide critical and timely data to inform scale-up of this model, especially in rural areas of the country that have been severely impacted by substance use related harms," says a National Institutes of Health report describing the study.
Research shows that there is a need for these harm reduction kiosks because people who inject drugs in Kentucky are under-utilizing the 82 syringe service programs that have been established in 63 of the state's 120 counties since 2015. Such programs are part of harm reduction programs that use a host of strategies to minimize the negative physical and social impacts of drug use.
"Data from our research funded by NIDA’s National Rural Opioid Initiative revealed that nearly half of people who use intravenous drugs had never used the existing staffed SSPs and, over 24 months of follow-up, SSP uptake remained low and program drop-out was not uncommon," says the NIH report.
The main reason drug users gave for not using the syringe programs was "fear of stigma," the report says, adding that most of those who cited stigma said they would prefer a vending machine or kiosk to get harm-reduction supplies.
This is not a new idea. The report notes that harm reduction kiosks have been operating around the world for more than 30 years, and research shows that they can expand syringe access. However, the researchers note that few exist in the U.S -- and none in rural areas.
The hope is that these machines, which do not require interaction with other persons, will allow drug users to obtain harm-reduction supplies more readily.
Early news reports about the grant referred to multiple vending machines, but the grant calls for only one kiosk. A second county with a traditional syringe service program will be used for comparison in the study, said project leader April Young, an epidemiology professor in the UK College of Public Health.
Young said the kiosk site hasn't been decided. "The machine location and design will be determined by a design team involving local and state stakeholders," she said in an e-mail. The NIH report says the machine's contents will be tailored to meet the needs of the community chosen for it.
Up to 400 study participants will get a magnetic swipe card that will give them access to the kiosk. Young said study participants will be screened for eligibility and must be at least 18 years or older.
As with in-person syringe services, the study will try to direct drug users into treatment and recovery. Young said in the email, "There is also an innovative feature of our design that could help connect study participants to health services, including substance use disorder treatment, HIV testing and treatment, housing assistance, domestic violence support, and Medicaid signup."
The $609,439 NIH grant, awarded in August, says "The proposed study will test the effectiveness, implementation outcomes, and cost effectiveness of a community-tailored, harm reduction kiosk in reducing HIV, hepatitis C, and overdose risk behavior in rural Appalachia."
Scott Lockard, public health director for the Kentucky River District Health Department, said he is exploring whether such kiosks could work in the communities he serves.
"We're exploring the ins and outs of the program," Lockard said. "We're exploring how the program can be utilized to best serve our clients. And I'm looking at potential locations within our district to position these machines so that they can best serve our population."
Beyond that, Lockard said his agency is getting ready to install "NaloxBoxes" at its local health departments which will allow people in his district to get naloxone 24 hours a day. Naloxone, known by the brand name Narcan, is a medicine that rapidly reverses an opioid overdose.
"We want to get as much naloxone out in the hands of the people as possible," he said.
The Louisville Metro Department of Corrections has put "Narcan Boxes" in its jail, and on Friday, Sept. 9, one was used by an inmate to save the life of another inmate, who was overdosing on fentanyl, saving his life, Gladys Bautista reports for WLKY-TV.
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| Stars show syringe-exchange sites; colors show district departments; white counties are independent. |
Kentucky still has more syringe service programs than any other state, but 57 counties still don't have one, including 21 of the 54 that the Centers for Disease Control and Prevention considers vulnerable to a rapid outbreak of HIV or hepatitis C among people who inject drugs.
"My God, if you've been identified by the CDC as being a county for a rapid HIV outbreak, you need an SSP. There's no ifs, ands or buts about it," Van Ingram, executive director for the Kentucky Office of Drug Control Policy, said at the annual Kentucky Harm Reduction Summit in August. "So we've got work to do yet."
Syringe exchanges are part of "harm reduction programs," which offer a host of strategies to minimize the negative physical and social impacts of drug use. They are also called syringe service programs or needle exchanges.
Such programs have been legal in Kentucky since 2015, but to have one, a community must have approval from its local board of health, the county fiscal court and the city where the exchange is located.
As of August, Kentucky had 82 exchange programs operating in 63 of its 120 counties, but Ingram said that despite efforts to expand these service programs, "That's not enough. We need more."
One program that had been approved is no longer operational.
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| Estill County (Wikipedia map) |
Walling said the health department has made several attempts to get the council to reinstate the program. "We have patients that call about it weekly," she said. "We're still having to refer them out of the county. . . . We still have a lot of requests for it, which we've expressed to the Irvine City Council."
Syringe exchanges provide a range of services that extend beyond the exchange of clean needles for dirty ones in order to decrease the spread of blood-borne diseases like hepatitis C and HIV. Those services include education on safe use and distribution of wound-care kits and Naloxone, which blocks a drug overdose. Other services are infectious-disease screening, vaccinations, and linking people to housing, food access, insurance, medical care, substance-use treatment and behavioral-health services.
At the Harm Reduction Summit, Alex Elswick, an assistant extension professor for substance-use prevention and recovery at the University of Kentucky, pointed to the value of the exchanges as a place that connects people who use drugs to care, even if they are not yet seeking treatment.
"This is a population that if syringe-access programs did not exist, would be utterly unengaged," said Elswick, who is in long-term recovery. "Think about that. . . . If you didn't have a syringe-access program in your community, where would these folks be going for any kind of care? Not just for syringes, but for care of any kind, for connection of any kind. They're utterly unengaged when you don't have harm reduction in your community."
Fentanyl test strips in short supply
One service that fewer than 30 of the state's exchanges offer is the distribution of fentanyl test strips, even though the powerful opioid was involved in about 73% of the state's 2,250 overdose deaths in 2021.
According to the CDC, Fentanyl is up to 50 times stronger than heroin and 100 times stronger than morphine. The strips only show if fentanyl is in the drug or not, not the amount of Fentanyl.
A key reasons some programs have been slow to offer the strips is that they are considered drug paraphernalia under Kentucky law, causing some local officials not to support the use of them.
Susan Dunlap, spokeswoman for the state Department for Public Health, said in an e-mail that the strips require different levels of approval, depending on how a program has been set up and its local protocols.
Scott Lockard, public health director of the Kentucky River District Health Department, said it is exploring the benefits of offering fentanyl strips in their programs and were working to address any legal concerns.
That said, Lockard noted that such strips may not be as important as they once were because fentanyl has become so prevalent. He said his agency is telling all its harm-reduction participants that they should automatically expect that fentanyl is present in every substance they use right now.
"We want to make sure that we're using them appropriately, that we have all our legal bases covered and that they're beneficial for those people who are coming into our harm reduction," Lockard said.
Ingram, asked about this at the summit, said the state was still trying to figure out the best way to respond to this challenge.
"I think fentanyl test strips are important," he said. "I think we've got to make ourselves available of them some way, somehow. It's on our radar and it's something we're trying to figure out."
Russ Read, CEO of the Kentucky Harm Reduction Coalition, called fentanyl test strips an "essential tool" to help save people's lives and to have an opportunity for another chance to seek treatment and get better.
"Each one of those test strips represents an opportunity for somebody not to die," he said. "And it's a real opportunity for somebody to make a decision . . . that I don't want to use anymore, or I need some help. It gives them another chance. . . . That's what harm reduction is all about."
Read said the coalition has distributed more than 120,000 fentanyl test strips across the state.
To learn more about harm reduction programs in Kentucky, go to the KDPH SSP webpage or the new KDPH Harm Reduction Program page.
By Melissa Patrick
Kentucky Health News
Helping people in addiction recovery meet their basic needs should not focus on abstinence, but instead should be provided along the continuum of a person's drug use as a way to mitigate harm, with a focus on wellness and autonomy, says an expert who knows recovery from his own experience.
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| Alex Elswick |
"Harm reduction and capital building are the things that we should be doing all the time for everyone," Elswick said. "We shouldn't be waiting until someone becomes abstinent, or until they become involved in the criminal legal system, or until they reach out for treatment. We can go and engage people who are suffering in our communities and we can mitigate harms. And we can build capital right now, without any barriers to access."
Elswick, who is in long-term recovery, often says that there is nothing special about his addiction to OxyContin and heroin, since it followed the same path as many others have experienced. What he says is special is his recovery, largely because of the abundance of resources that were available to support him, including housing, transportation, employment, education, access to medical and mental-health care, and relationships with family and community.
Elswick calls those resources "recovery capital" and described them as anything that promotes recovery, or anything that improves the odds that a person will be successful in their recovery.
He stressed that everyone recovery needs such resources, and not just after they stop using drugs. And just like Maslow's Hierarchy of Needs, which describe motivation, he said a person who has an addiction to drugs must have their basic needs met first before they can even consider seeking treatment and recovery.
But the problem, he said, is that we often use abstinence as a precondition to providing these basic needs for people in the recovery process.
"I want to suggest that we're flipping it upside down. We're expecting people to do the incredibly, in some cases impossible, work of becoming abstinent without providing them with all the resources that they need in order to do so."
A key example of this upside-down thinking is housing, because there is little to no housing available for people who use drugs or who are in the early stages of the recovery process, Elswick said. Nor is there housing for people who are abstinent but are on a medication for opioid-use disorder, like buprenorphine or methadone.
Instead, he said, we have sober housing for people who are already abstinent -- and if a person living in one of these houses experiences a recurrence, which is common, they are kicked out.
He added that the same is true for drug users' access to social services, which often requires a drug test; that people are kicked out of treatment if they relapse, even if they sought treatment for exactly that problem; and that families are often told to deny support of a loved one if they are using drugs, regardless of circumstances.
In each of those circumstances, "You're going to be deprived of your recovery capital, despite the fact that research says that would improve your odds of recovery," he said. And the only way to change this, he added, is to prioritize recovery above abstinence.
Elswick traced the concept of recovery capital to a study by University of Denver Professor William Cloud, who found that college students with addictions were recovering at a significantly higher rate, than the general population, sometimes with no formal interventions.
Cloud determined that the students recovered better because most came from relatively privileged backgrounds and had access to most of the social supports that they needed to recover.
"The value of recovery capital and harm reduction is that it allows us to have a relationship with someone, as opposed to saying, 'Come to me when you're sober'," said Elswick. "It allows us to have a relationship so that that relationship itself can be a therapeutic. That relationship itself can be a component of recovery capital."
Elswick concluded with pushes to battle the stigma that still plagues drug users, even among health-care providers and treatment centers, and to make medication-assisted treatment for opioid-use disorder more accessible. He cited studies that prove this is the gold standard of care, but 90% of people who need treatment don't get it.
"My main takeaway message is, I want us to shift the focus away from abstinence toward recovery capital and building recovery capital and mitigating harms, because it's the more effective approach and I think you might find it'll lead to more abstinence than you realize."
Elswick is the co-founder of Voices of Hope, a recovery community organization.
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| Daryl Hams, registered nurse and project director of the Regional Harm Reduction Collaborative (Photo: Amanda Rossman, Cincinnati Enquirer) |
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| Billy Golden, a harm-reduction coordinator at Caracole, works at a drive-up syringe exchange. (Cincinnati Enquirer photo by Amanda Rossmann) |
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| Tinley Creech, Darian Creech, Connie Campbell and Ashton Burks pose after doing the virtual 5K as part of Wolfe County Addiction Recovery Week. All are in the same household. (Photo provided) |
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| Wolfe County (Wikipedia map) |
| Bracken County Health Department photo on Facebook |
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| Graph from Kentucky Injury Prevention Research Center, University of Kentucky |